If you are gluten sensitive and have cardiomyopathy it is possible that going on a gluten free diet may reverse the condition as the following cases illustrate:

Two winners, one loser (who failed to go gluten free).

Three individuals with idiopathic dilated cardiomyopathy and coliac disease, were all instructed to follow a gluten free diet. Two of the three patients recognized the health effects of gluten free diet and were faithful to the diet. After 28 months following a gluten free diet, they showed improvement in their echocardiogram tests, as well as in a cardiological questionnaire and the Gastrointestinal Symptom Rating Scale questionnaire. The third patient refused to eat gluten free and experienced a worsening of symptoms. [click to continue…]

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It should surprise you to learn that going on a gluten free diet can reduce or eliminate Rheumatoid Arthritis symptoms.

For example: in 2001, one US study confirmed that going gluten free clinically benefits rheumatoid arthritis patients. In this study 66 patients with active rheumatoid arthritis were randomly assigned to either a vegan gluten free diet (38 patients) or a well balanced non-vegan diet that included gluten (28 patients). The tests subjects participated in the study for 12 months and were assessed at the start of the test, as well as at 3, 6, and 12 month intervals. Researchers also measured levels of antibodies against gliadin. [click to continue…]

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Autoimmune diseases such as rheumatoid arthritis can cause osteoporosis, so can gluten sensitivity. In a 2005 study, researchers evaluated 266 individuals with osteoporosis, along with 574 without the condition, to identify the prevalence of coeliac disease. They discovered that close to 5 % of people with osteoporosis had a positive blood test for coeliac disease, which is significantly higher then in the individuals without osteoporosis who only had 1% that tested positive for coeliac disease. These finding are clear enough that the researchers recommended blood tests for gluten anti-bodies in all patients with osteoporosis. [click to continue…]

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Autism and Gluten

November 26, 2009

9 Years of Non-Communication

A 9 year old boy was diagnosed with autism at the age of 3. The boy never started talking, found it difficult to stay focused, and had trouble responding to communication. From the age of 7 he finally started saying words spontaneously. When the boy was 9 his parents started him on a Gluten Free/Casein Free diet after advice from friends. Within the first 4 months the boy had become potty trained, started reading, was talking in long and sophisticated sentences and he was even able to interact with other children and adults. [click to continue…]

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Gluten Free Cupcake

In 2004 a research study was published examining the link between gluten sensitivity and severe headaches.

The research was focused around “soft” neurologic conditions such as headaches in young adults and children. Headaches were the most commonly found neurologic disorder in the 111 patients with celiac disease. Out of the patients in the study; 64.5% with headaches had late onset symptoms of celiac disease or were gluten sensitive, and 35.5% had the early infantile form of celiac disease. [click to continue…]

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Anaemia and Coeliac Disease

November 12, 2009

The most common type of anaemia is Iron Deficiency Anaemia. Iron is an important part of haemoglobin which is the oxygen-carrying pigment in the blood.

Your blood usually gets iron from the food you eat and by reusing the iron in old blood cells. When your blood is not gathering enough iron from you food you become anaemic, symptoms of anaemia include being easily tired, fatigued, or prone to other illnesses.

Well before the sensitive blood tests that we have today, that detect gluten sensitivity and coeliac disease, some doctors realised that iron deficiency anaemia could be caused by coeliac disease. A case from 1994 demonstrates this. [click to continue…]

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In my last post I started to talk about chronic fatigue syndrome and fibromyalgia, today I discuss the link with gluten sensitivity.

Laboratory tests will not detect fibromyalgia syndrome, but the American College of Rheumatology has issued guidelines for diagnosis, patients must experience tenderness in 11 or 18 “tender points” on the body.

• How does all of this relate to gluten sensitivity?

A lot of the points raised above can be linked to gluten sensitivity. For example, people who have certain rheumatic diseases – rheumatoid arthritis, lupus or ankylosing spondylitis – may be more likely to have fibromyalgia. One common symptom for gluten intolerant suffers is tiredness.

Researchers tested 100 patients for the prevalence of coeliac disease among people who visited the doctor for CFS.

They discovered two cases, 2% of previously undiagnosed coeliac disease among the CFS patients. The researchers wrote, “given our prevalence of 1 per cent and the fact that there’s a treatment for coeliac disease, we now suggest that screening for coeliac disease should be added to the relatively short list of mandatory investigations in suspected cases of CFS.”

This test was conducted in 2001 and only used blood tests; nowadays tests are conducted using serum testing. Had today’s more-sensitive testing been available for this study, researchers would have found a much higher rate of CFS sufferers who were gluten sensitive.

In 2003, another study identified a rate of misdiagnosed fibromyalgia in people with coeliac disease. The study found that although 82 per cent of people ultimately were diagnosed with CD complained of fatigue, doctors initially only diagnosed 9 per cent of these patients with fibromyalgia, a big difference as you can see.

Why the confusing or missed diagnosis? Many times people with gluten sensitivity are tired and that tiredness may well result from iron deficiency anaemia.

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Do you suffer from any of these symptoms?

Are you tired, so tired that you can hardly function? In addition to feeling tired do you get muscle aches and pains and possibly flu-like symptoms, such as headaches and perhaps abdominal pain and diarrhoea? And does exercising seem to make your fatigue even worse?

If you’re saying yes to these above points there’s a high chance that you suffer from chronic fatigue syndrome (CFS) or fibromyalgia.
Both CFS and fibromyalgia are similar syndromes but to be diagnosed with CFS, a person must satisfy the following criteria:

  • The fatigue must not be a result of another medical condition.

Doctors also look for the following symptoms when accessing CFS: sore throat; tender nymph nodes; substantial impairment in short-term memory or concentration; muscle pain; multiple joint pain without swelling or redness; headaches; unrefreshing sleep; and postexertional malaise lasting more than 24 hours.

Some GP’s confuse CFS and fibromyalgia because of their similar symptoms. The main difference between the two is the widespread pain and tenderness in the soft tissues felt by fibromyalgia sufferers. Patients have described the pain as “aching, exhausting, and nagging, and the tenderness are readily felt at certain points around the body, particularly the joints and multiple organ regions.”

In my next post I discuss the link between CFS and gluten sensitivity.

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A recent study has uncovered that a gluten-free diet can reduce inflammatory bowel disease (IBD). When properly diagnosed, individuals with IBD – like symptoms do respond to a gluten-free diet. The following conclusions were drawn from a 2004 paper investigating three women who had celiac disease and IBD symptoms:

One of the woman tested had a 6-month history of abdominal pain and weight loss. The tests uncovered that she has hypothyroidism, as well as iron-deficiency anaemia. A biopsy revealed lesions consistent with celiac disease and proctitis. She went onto a gluten-free diet and the IBD symptoms have considerably reduced.

A second woman has suffered for 10 years from ulcerative colitis, failed to gain weight, despite a good diet and control over her lower gastrointestinal sympyoms. Testing showed that she was anaemic. With further endoscopic examination, doctors found that she had celiac disease. She went on a gluten free diet and has since started to gain some weight.

The last woman in the research was not so fortunate, but her misfortune might in fact due to her lack of adherence to a gluten-free diet. This patient had been diagnosed with coeliac disease at the age of 6 but she didn’t experience any problems until the age of 33. Then, she suddenly showed symptoms of colitis, which required surgery. Please note severe cases of colitis can be treated with surgery. After surgery, the woman was still unable to gain weight. She also continued to have abdominal pain. The doctors later discovered that she had not followed a gluten-free diet, despite knowing that she was gluten intolerant.

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FoodContentAlerts.com (FCA)  (http://www.foodcontentalerts.com), a free online and mobile service, was announced today by Durk  Barnhill, General Manager, TAXI NY.

FoodContentAlerts.com provides critical information and personalized data  management both at home and on-the-go for the nearly 70 million people in the United States and Canada alone suffering from food sensitivities, including food allergies, celiac disease and non-celiac gluten sensitivity, and those  affected by their needs including children’s playmates, teachers, friends, family members and co-workers.

“After extensive research and testing, we’re thrilled to launch this  first-of-its-kind highly personalized food management tool,” said Barnhill.  “Charter sponsorships with Enjoy Life Foods, Twinject Canada and Guardian
Angel Foods confirm the marketing value of this tool for these companies and their unique products in the food sensitivity category.”

FCA is a free web service designed to help sufferers of food sensitivities (allergies and intolerances) manage the many types of detailed data they need to keep specific ingredients and foods out of their diets.

The site provides  users with safe, reliable online and mobile tools for creating customised databases, recipe boxes, shopping lists and food sensitivity profiles. In addition to tips on avoiding many foods, FCA helps people discover new food recommendations from others dealing with their same sensitivities – they’re able to share recipes, ingredient updates and other information with the FoodContentAlerts.com user community.

“There is a growing need for this type of safe and reliable information that is easily accessible through the Internet and mobile phone. The number of people dealing with food sensitivities is growing daily, and we have partnered with FCA for the help it can provide consumers,” said Scott Mandell, CEO, president and founder of Enjoy Life Foods. “Sponsoring this service provides a valuable resource for us to connect with them.”

The online and mobile service are accessible worldwide – and, following a beta stage, include users in the United States and Canada, as well as new user groups in the United Kingdom, New Zealand and Australia.

“I wish this wonderful website was around when my son was first diagnosed,”  said Gina Clowes, founder, Allergymoms.com. “It would have saved me hours and hours of time each year, reprinting ’safe’ snacks lists for family and friends. I know this will be a fantastic resource for allergy parents to share with teachers, relatives, friends and family.”

The FoodContentAlerts.com site features include:

– My Safe Foods: Allows users to create customized lists of “personally  approved” foods and share them. A great way to find new recommendations for people on restricted diets.

– My Recipes: Input your own recipes, discover new recipes, share with others, and add ingredients to a shopping list or share with friends and family.

– My Shopping Lists: Create and manage multiple lists; update or add items from your safe-foods list; and share with teachers, daycare facilities, camp counselors, friends and family.

– Community Forums: Share ideas with other people suffering from food sensitivities.

– News Modules: Receive up-to-the-minute product safety alerts or custom information on food allergies, celiac and more – from around the world.

– Mobile Access: Many features of FoodContentAlerts.com are designed to be available to anyone with a web-enabled phone, allowing users to access their online account to verify that a product is on a safe-food list, check a recipe’s ingredient list and more. Mobile works on just about every web-enabled phone around the world.

You can Access the website FoodContentAlerts.com.

Source: PRNewswire

Regards

Paul Smith

celiac disease blog

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